Friday, March 28, 2014

Weekly Wrap-Up: My Son Who Overcame!!!!

For this week's wrap-up I am going back to last Friday night.  Our Senior had one more class complete to be a high school graduate.  Last Friday night he gets this huge smile on his face and said he was done FOREVER.  That's right, I am now the proud parent of TWO high school graduates!!!!

Tuna's story is an amazing one of determination and overcoming.  I hope this inspires someone who really needs to be encouraged.

My son was born with a unilateral hearing in his left ear and fluid behind the right.  I knew at six weeks that he couldn't hear well, but the doctor ignored me (the first of many fights with doctors through his life).  When he was 2 1/2 a neighbor told me about the early intervention program through the public school system.  My son, had a 95% overall hearing loss; 50% was the deaf ear and the other 45% was from the fluid that needed a prescription to clear.  If the doctor had listened and sent him for the test (HMO required doctor referral), he would have had full hearing in the right ear.  Sorry the doctor said.  He then went to speech therapy 2-3 times a week for 2 years, something that wouldn't have been necessary if the doctor had listened in the first place.  As a further result of the hearing loss, he had auditory processing disorder.  He heard in one ear, but the sounds and words would get dropped along the way.

I also had a feeling the he had a form of Autism and a stomach disorder.  More arguing with doctors who danced around and hinted at munchausen by proxy.  We changed doctors again.  This one picked up on my son's behaviors the first time we met and referred him to the Dan Marino Center for Autism at the Miami Children's Hospital.  He was diagnosed with Asperger's at eight-years-old.  We, however, had been dong therapy for it at home though since he was about four.  Always look in the eyes, stop looking away, look at people when they speak to you and when you speak to them, etc.  He was also diagnosed with OCD and ADHD.  We could not medicate the ADHD because the medication caused seizures.


He actually caught our rabbit!
As if that wasn't enough, he was diagnosed through another specialist with dyslexia, but with words.  We attended eye therapy every week and did "homework" therapy for 2 1/2 years.  He was also diagnosed with Cyclical Vomiting Syndrome.  Most simplified, he would get stomach migraines that would last from 2-4 weeks.  During this time he would survive on ONE peanut butter and jelly sandwich a day, nibbling a little bit at a time.  CVS can be deadly and one little girl we knew nearly died from it when she was about six.  His gastroenterologist dropped his as patient because he missed an appoint.  My cousin's ten-year-old daughter was killed in a car wreck five states away and we went to her funeral.  I kid you not.

Fast forward years later.  At the end of fifth grade he was re-evaluated by a children's hospital where we live now.  They confirmed all of his diagnosis, but said that he had achieved more than ever would have been expected from him already.  They attributed this to homeschooling.  He was unmedicated, but we lived by the belief "Legtimate causes, no excuses!"  He learned to control his ADHD, OCD, and Asperger's through shear will and determination ... and a loving supporting family.

We were told not to expect him to be able to do a full high school load.  He proved them wrong, even choosing to take an extra science class this year.  He has worked with an electrician who couldn't believe he had labels because he had a "better understanding and working knowledge" and did "better work than most professional electricians".  He has dealt with many adults who don't believe his labels.  Last year he no longer qualified for special assistance from the public school (we never used it except for yearly testing).  They told us that at this point, he wouldn't even be diagnosed as Asperger's.  HORRAY!!!  He continued to homeschooled through high school where he has completed all of the standard classes, plus extra classes, and will be receiving a full regular diploma from an accredited high school that we use as our umbrella school.  Crossroads Christian School is just absolutely amazing and have been so good to us!!!  I highly recommend them.  I AM SO PROUD OF HIM I COULD BURST!!!

Through everything he has remained loving and kind, never holding a grudge against those who hurt him or teased him.  I believe it is his relationship with JESUS that has made the difference.  My son has overcome mountains with the faith of a mustard seed.  He is a true inspiration in my life, and I love him more than words can ever express.

Linked to: Weekly Wrap-Up: The One With the Crazy March Snow


Mary said...

Congratulations- to both of you!

Chrystal Bliske said...

Many many congratulations on so many different levels!!!

Becca said...


Nita said...

Amazing story of determination and allowing our kids to grow beyond our expectations. I'm visiting from Weekly Wrapup

Anonymous said...


I have said these things unto you, that in me you may have peace. In the world you will have tribulation. But take heart; I have overcome the world.
~John 16:33